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A Donor Mother's Story

 

Spring brings with it many gifts...the bright hash of the goldfinch and the budding of life in so many varied forms. When the sounds of Spring 1988 filled the air, my son, Aaron, an avid explorer and lover of all creatures great and small, set out for a local creek with expectations of discovering new life. As he patiently attempted to cross the road directly in front of our home, Aaron was struck by a motorist. Before my eyes, my child was spun over the hood of the car, up the windshield, his rubber boots flying off as he cart-wheeled through the air to land ninety feet down the road. Following three intensive days on life-support, Aaron was declared brain-dead. Instead of preparing his tenth birthday celebration that weekend, we found ourselves preparing his funeral.

There has been no protection from the profound and searing pain of this loss, yet I have found sources of comfort to be as many facetted as life itself. Among the variety of unexpected ways comfort has found its way into our lives, is the reality and endeavor of organ donation.

At the time that Aaron was pronounced brain-dead, I was fortunate to have placed within my hands the option and opportunity for organ donation. The decision to donate organs for transplant was not difficult to make. When Aaron's physician presented this option to me. I knew immediately my response would be affirmative.

I have often considered what factors contributed to making that decision. I know that one of those factors is attributable to the character of the physician and nursing staff who cared for Aaron. The combination of intellectual thoroughness and technical know-how with gentleness of spirit and sensitive compassion had reinforced the sense of confidence and trust I'd place in them, necessary to having entrusted my child to their care. The option of organ donation was presented in a very informative, non-pressuring and direct manner, with the acknowledgement of the difficult and regrettable circumstances into which we had been thrust. I had observed their treatment of my son as not coldly clinical, but compassionately competent. Had the option for organ donation not been offered by Aaron's physician, I would have had deep regrets today.

Another factor that eased the making of this decision was the intuitive certainty that this was something Aaron himself would have been comfortable with. The brevity of his life had been filled with making microscope slides, retrieving small animal skeletons, caring for crabs, crayfish, ghost shrimp, spiny mice, moles. He pored over books on birds, fish, skeletons and reptiles, wonder-struck by the beauty and variety of nature's gifts. He was a tender-spirited child who most certainly would have made this very decision for himself.

Finally, I knew within my own heart that I could not withhold healing and life from someone else. It was not my entitlement or my place to do so. Here I had placed within my hand, a gift as profound as my own grief; the opportunity to contribute to the healing and life of someone else. That other person was also someone's child, parent, sibling or friend. It provided an opportunity to cherish and reaffirm life, ironically offered in the pit of my own retching shock and turmoil in the face of my child's death. A taste of springtime in the bleak of winter, the option to donate was itself a gift.

When we look beyond the immediate circumstances of the decision for organ donation. however, we find there are foundational factors in life that move us in or from either one direction or the other. I or me, there were two major perceptions about life that had significant bearing on my decision.

One of those perceptions was that whatever we have in life is entrusted to us. We don't own the planet we live on. We don't own our children. Ownership of property, material and personal goods really means that we are granted the opportunity and freedom to take responsibility for their use and well-being. Everything we have is a trust. It is entrusted to us for the brief time we are here. 

The other perception that fundamentally prepared me for an affirmative decision was the conviction that we are indeed our brothers' keepers and they are our keepers, without which community is impossible. We are entrusted to one another.

With the increasing awareness of the global, national and social problems we have created for ourselves as North Americans, we seem to experience also a growing grass-roots awareness that our priorities need to take into account a deep and renewed sense of responsibility for life as we find and develop it, beyond personal achievement, satisfaction or gain. It is my sincere conviction that when a sense of stewardship for our national and personal resources and responsibility for the well-being of the earth and of one another become part of our personal and national consciousness and understanding of life, there will no longer be a shortage of' organs for transplant. No one would have to die waiting.

One week before his accident, Aaron, with birthdays in mind, had come to me and said, "I'm sorry I can't get you a big birthday present, Mom." I hugged him and replied. "That's alright, Aaron. You are the present.'' I wondered within my heart whether he would ever truly know what a profound and wonderful gift he was, how grateful I was to share his life. I could never have imagined that he would provide the gift that would bring a special touch of springtime into the lives of six persons unknown to us. His gift of healing and renewal was the last gift we were to give together.

 

Mary Steenland

 

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